May 22, 2012
Well we dodged another bullet for a while. Sometimes it feels like we are playing a game of Russian Roulette, never knowing when we will find the bullet, but for now, we have dodged the bullet once again.
Both ECHO's were stable, but due to issues unrelated to Marfan's we are making minor medication changes on both of them.
For my daughter, it will likely have no effect (unless we run into an allergic reaction), but for my husband it COULD have an adverse effect so we will do some extra monitoring to make sure we don't have any issues. He also has heart disease & high blood pressure on top of the Marfan's (a wicked combination) so we have limited options what we can do for medication changes, so this will be a bit of a tight rope act.
So for the most part, another routine check up, and for the hubby, back in 6 months, for my daughter, back in a year... YEA!!!!